About Us

The Type 1 Diabetes Network is an Australian organisation of people with Type 1 Diabetes, founded in 1997, which provides support, information and a voice for the Type 1 community.

The mission of the Type 1 Diabetes Network is to create opportunities for Australians affected by Type 1 Diabetes to share knowledge and experiences in order to attain an optimum quality of life through:

  • building an empowered and active Type 1 diabetes community;

  • offering support and encouragement;

  • facilitating access to resources and information; and

  • advocating and raising awareness on issues of concern to people affected by Type 1 Diabetes.

The organisation is run by a dedicated team of volunteers: all people with Type 1 diabetes ourselves.

 

Our current activities include:

  • This website is full of facts to Learn and Live with Type 1 Diabetes.

  • On the Reality Check or Munted Pancreas discussion forums, you can write queries, respond to issues, have a moan, bitch or rejoice!

  • Yada Yada , our email newsletter, will keep you up-to-date with the latest research info, news from around the country, ideas and stories from people living with Type 1 diabetes. Contributions and news are always welcomed.

  • Seminars & Events - Sometimes it's good to get together with people who understand what you mean without having to go into any of that tedious detail, and enjoy a beer at the same time. We run informal get-togethers as well as more structured seminars.

  • Information: We work to fill gaps in information for people with Type 1 diabetes. Our current publications include: Can I Have a Healthy Baby ? - a guide to pregnancy with diabetes, A Starter Kit for Adults with Type 1 Diabetes , and a Directory of Endocrinologists and other Health Professionals that have experience working with young adults with Type 1 diabetes.

 

Governance 

Members of our Management Committee are as follows.

 

kate.jpg Kate Gilbert (President, Melbourne) Kate trained in political science and public policy development at the University of Melbourne and in 2010 will complete a Masters in Public Health majoring in Health Program Evaluation. Kate is currently on secondment to the Victorian government’s Department of Health supporting the implementation of new chronic disease programs and partnerships in primary and community health.

Kate was diagnosed with Type 1 Diabetes during her first year at school, at the age of five. In 1998, finding the support available for adults with Type 1 Diabetes to be lacking, Kate formed a network of young adults in Melbourne, which has grown into The Type 1 Diabetes Network. Kate has been President since the organisation was incorporated in the year 2000.

 

MJSii.JPGMelinda Seed (Treasurer, Sydney) Melinda is a Chartered Accountant with more than ten years experience in the management and governance of not-for-profit organisations. She has a Bachelor of Economics and a Masters of Arts in Communications, with a special interest in online communication. Melinda has been Treasurer of the Type 1 Diabetes Network since 2000 and was diagnosed with Type 1 diabetes at 1 year of age.

 

  

coll.jpgColleen Clarke (Secretary, Melbourne) Colleen has a strong background in administration, with experience in the oil industry, financial planning, project management and local government. She was diagnosed with Type 1 Diabetes at 33. Colleen's experience of living with diabetes has included also managing long-term infertility, going through many IVF cycles before falling pregnant naturally at age 40. Colleen has volunteered with Reality Check and the Type 1 Diabetes Network for many years and currently works as the organsiation's administration officer and became Secretary in 2009.

 

 

Tony.jpgTony Bernauer (Sydney) Tony works in telecommunications and has an Advanced Diploma in Electronic Engineering and a Certificate IV in Business (Frontline Management). He has played an active role in community organisations for over 30 years, from an early involvement as a commitee member of his local surf lifesaving club through to positions such as Vice President - Education of his Local Toastmasters Club in recent times.

Tony believes that he can only improve life for people with T1D by being 'involved' in that change. He has been a moderator of the Reality Check online community since 2007 and has taken on a leadership role in the major upgrade of the Type 1 Diabetes Network's website. He joined the Management Committee in 2009.

 

vashti.jpgVashti Biffanti (Canberra) Vashti studied business at the University of Central Queensland majoring in marketing. She has a strong sales and client relationship management background with experience in the financial services sector. She now works in philanthropy as the Executive Office for GreaterGood-The Capital Region Community Foundation. She co-facilitated a support group in Brisbane for pregnant women with Type 1 and gestational diabetes and is now involved in the development of a support network for Type 1s in Canberra. Vashti has represented Type 1 diabetes in the media and spoken at several functions. Diagnosed with Type 1 diabetes in 1982 at the age of 12, Vashti is keen to raise the profile of Type 1 Diabetes in the general community and tackle the many misconceptions that exist. She joined the Management Committee in 2009.

 

IMG_2239 compressed.JPGSusan Greenbank (Brisbane) Susan has worked in health care - including health promotion, advocacy, communications, public relations, behavioural research and adminstration - for over 13 years and holds a Bachelor of Applied Science (Health Promotion/Psychology). She is currently the manager of the Queensland Diabetes Centre at the Mater Hospital in Brisbane. Susan enjoys organising events and in 2009 introduced a seminar series for people with Type 1 diabetes in South East Queensland. Susan was diagnosed with Type 1 diabetes in 1992 at the age of 17.

 

 



billhead.jpgBill Murray (Bendigo, Victoria) Bill has been a technical expert with a domestic satellite service for over 20 years, and has also worked as an electorate officer for a state Member of Parliament. Bill is active in state and federal politics and has been a member of various campaign committees since 1988. He is currently a delegate to the state conference of a political party and campaign manager for a federal politician. Among Bill’s other involvements in community organisations have been executive positions on kindergarten and school committees. Bill Murray is the father of a 19 year-old who was diagnosed with Type 1 diabetes just after her third birthday. He has co-managed the Munted Pancreas online community for parents of children with Type 1 diabetes since 2007 and joined the Management Committee in 2009.

 

tracy.jpgTracy Rail (Canberra) Tracy has worked as an industry and regulatory policy analyst and manager in the federal government for over 20 years, including the infrastructure and industry departments. She has managed organisational reviews, and participated in Council of Australian Government policy reviews. She is a committee member of a local Canberra community choir. Tracy has qualifications in economics and is a graduate of the Australian Institute of Company Directors. She was diagnosed with Type 1 diabetes in 1972.

 

 

jane.jpgJane Reid (Cooranbong, NSW) Jane has had Type 1 diabetes for 45 years, and over the past ten years has come to realise the importance of a strong lobby for people with Type 1. She has experienced various complications and setbacks with Type 1, but is determined not to let it rule her life. Her working life was mostly as a medical secretary, until she returned to university as a mature age student. She now has a BA (Hons) in Ancient History and Classics, and will soon return to university to pursue a research degree in Greco-Romano Art and mythology. Jane is a trained singer and sang semi-professionally as a soloist and chorister in various choirs, notably the Central Coast Chorale. She is the secretary of the local Chamber of Commerce. Jane is married to John, who gives great and unconditional support as only an experienced Type 3 can.

 

 

susannah.jpgSusannah Trigg (Sydney) Susannah is a practising solicitor working in a national law firm in the areas of commercial and property law. She has a Bachelor of Laws and a Bachelor of Social Science majoring in psychology. Susannah was diagnosed with Type 1 diabetes in 2000, while completing her final year of high school. Susannah has found the support of the Reality Check online community to be invaluable in dealing with the daily task of living with diabetes. She joined the Management Committee in 2009.

 




Henry-Vila.jpgHenry Vila (Melbourne) Henry is a successful business manager with a focus on strategy and technology leadership. Henry has held a number of positions in Australia, USA and Latin America in the Telecoms, Internet Media, Banking, Insurance and Manufacturing sectors and holds an MBA from Melbourne Business School and undergraduate studies in Computer Science. Diagnosed with type 1 as an adult, Henry has been a member of the Reality Check online community for a number of years, became a moderator in 2008 and joined the Management Committee in 2009.

 

 



Belinda.jpgBelinda Williams (Melbourne) Belinda is Melbourne-based but country born and raised. Currently working as a corporate manager in client service and staff training, Belinda previously worked for eight years in the health and fitness industry. Diagnosed with Type 1 diabetes at age 12, she had a relatively uncomplicated ‘initiation period’ as her younger sister had been living with diabetes since she was just twelve months of age. Fond memories of Anglesea Diabetic Camps as both a camper and a leader, Belinda joined the Management Committee in 2009 and hopes to help other Type 1's get connected, and to also increase the profile and understanding of the Type 1 Diabetes Network within the wider community.

 

 

The Type 1 Diabetes Network is an incorporated association registered in Victoria, Australia. We are also registered by the Australian Tax Office as a Deductible Gift Recipient on 1 July 2007. Gifts of $2 and over are tax-deductible.

Key Governance documents:

President's Annual reports:

Authorship

The authors of all information on this website, unless otherwise stated, are not medical professionals but people who live with diabetes themselves and draw on their extensive personal experience, as well as a variety of professional experiences. Where specific medical advice is given, referencing is given wherever possible.

The information provided by Reality Check is designed to support, not replace, the relationship that exists between a patient/site visitor and his/her doctors, nurses or other medical professionals.

Supporters and Funding

This website is maintained by unpaid volunteers. This site receives no ongoing commercial or external funding, with the exception of occasional advertising which is clearly identiied as such, and is therefore independent.

In 2000-01, support was received from Diabetes Australia-Victoria, who paid the web hosting costs and the services of a web designer to help with content publishing.

Our resource published in October 2004, A Starter Kit for Adults Diagnosed with Type 1 Diabetes was developed through a major project funded by the Australian government Department of Health & Ageing. The Starter Kit's online publication on this site was also funded by the federal government through this grant. Since 2006, Abbott Diabetes Care have provided in-kind support by reprinting and distributing the Starter Kit throughout Australia.

The Type 1 Diabetes Network has been registered by the Australian Tax Office as a Deductible Gift Recipient since 1 July 2007. Gifts of $2 and over are tax-deductible.

Brief History of the Type 1 Diabetes Network

  • Dr Alison Nankervis and Diabetes Australia-Victoria's then head of Diabetes Education, Trish Streitberger, identified a gap in services for young adults with diabetes in 1997, and supported a gathering to be led by young adults themselves.

  • The first dinner was attended by 15 young adults in January 1998

  • A printed newsletter, Yada Yada began production in 1998 and continued for 15 issues

  • A website and an online community was created in 1999.

  • The Inaugural Summit of Young Adults with Diabetes was held in 1998, and similar conferences were held in 1999, 2000 and 2003.

  • A partnership with the Royal Melbourne Hospital provided office and meeting facilities in 2001 - 2004, and led to a collaborative project to review Transition Services .

  • In 2003, Kate Gilbert was a Victorian finalist in the Young Australian of the Year Awards for her work to establish the network.

  • A grant from the Australian government in 2003-04 culminated in the production of a major educational resource the Starter Kit for Adults Newly-Diagnosed with Diabetes , which continues to be distributed throughout Australia free of charge thanks to corporate sponsorship

  • Researching the experience of living with Type 1 diabetes and health service utilisation became a focus from 2005 with papers accepted by major conferences including the World Diabetes Congress 2006 and the Australasian Health Services & Policy Research Conference 2007 and being an invited speaker at the World Diabetes Congress 2009 in Montreal.

Last Updated ( Saturday, 19 June 2010 )